We've spent some time this week saying goodbye to our Aunt Sue. She has suffered through one of the worst diseases I can think of - ALS - during which the muscles in your body slowly paralyze and your mind continues to function at 100%. I am so grateful for the opportunities I've had to spend time with her and other family members during the last days of her life here. She has been so positive and peaceful. She continues to show us that her personality of loving and giving - and doing it her way has not changed. She has such limited abilities to communicate, but finds every way possible to continue to show love and give gifts - those same things that have always been such a huge part of who she is. We have had lots of time to talk about memories and the fun times we've shared.
She has sent everyone all through the house in search of specific items that are intended to go to specific people. You have to bring it and show it to her so that she knows it is taken care of.
My uncle Paul, not surprisingly, but true nonetheless - is an amazing caretaker for her. Watching them together feel very much like a mother and newborn baby. He knows all of her signals and moves - no one else can tell exactly what she needs, but he usually does. And if he doesn't he figures it out. He showers her with love and affection which is a beautiful thing to witness. He puts on a happy face for her so that she won't see how difficult it all is for him. She must know, but he doesn't show it in front of her.
I'm trying not to think too much about how much I will miss Sue, but rather remember the good things she has taught me about enjoying life as it comes and giving with a full heart.
No me go potty mommy.
